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  • This project was expired on 2014-09-20

About our project



The Pediva Coordinated Care Program™ has six pillars: (1) ease the burden on families caring for children with chronic illness; (2) consolidate the control and feedback of medical devices and treatment regimens into one easy-to-use electronic device; (3) expedite the maintenance, monitoring, and transfer of key information and metrics among the child’s treatment team; (4) track and monitor patient outcomes to allow evidenced based treatment adjustments that avert hospital visits; (5) assist in obtaining and supporting insurance coverage for treatment; and (6) build a comprehensive pediatric patient registry to evolve the treatment of pediatric patients.

At the heart of the Coordinated Care Program is the Medical Treatment Monitoring Device. The Medical Treatment Monitoring Device interface would be designed to give the caregivers, physicians and patients access to, among other things, (i) a single point of contact for assistance in uploading and tracking patient data; (ii) disease specific support resources; (iii) the ability to maintain nutrition, exercise, and medication diaries; (iv) a timeline of key treatment events and medication changes; (v) immunization tracking; (vi) easy to read progress report summaries which could be provided to caregivers and case workers; and (vii) direct interface and data upload from key home use medical equipment.

We are asking for funding to assemble and develop the prototype of the Medical Treatment Monitoring Device specifically tailored for the Cystic Fibrosis patient population. Once we have finalized the device for Cystic Fibrosis, we plan on expanding to other chronic disorders. It is anticipated that the initial device will include the following features:
1. Medical Device control and monitoring capabilities. Blue tooth capabilities to wireless upload of key information from community-based and in-home use of medical devices which are routinely used in the CF population and engineered for and tested in the particular age group.
2. Patient Dashboard: Reports of key CF patient metrics – one for physicians and one for caregivers.
3. Treatment/Key Event Timeline: An easy reference for physicians and caregivers to access timing of key patient events relative to current treatments.
4. Immunization Record
5. Electronic Health Records for the patient. Back-up and detailed information on a click-through basis from the patient dashboard
6. Dose monitoring and adjustment functionality. Allows the physician to review and adjust key parameters in dose titration remotely.
7. Pharmaceutical (with OTC products included) patient administration diary with easy to use record keeping for reasons for skipped or delayed dosing
8. Patient “quality of life” record and diary, e.g., record of bowel function, caloric intake, mood and general well-being
9. Reimbursement and Payer Tools: Caregiver resources to explore and understand insurance coverage. Provides tools to obtain coverage if warranted. Simplifies the approach.
10. Educational components: Educational content on the disease state and will potentially rank the key changes that the individual may make to improve their quality of life.
11. Games and gaming site for patients. All designed to incentivize treatment adherence.
12. Connectivity with CF community and pre-existing informational platforms for parents and caregivers. There are significant resources available to caregivers of CF patients. This component would connect caregivers with those resources.

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